A mother from Swansea, Wales, is urgently seeking treatment for her four-year-old son, Tate, after he was diagnosed with a rare form of childhood dementia. Tammy McDaid, 33, revealed that Tate has Sanfilippo Syndrome Type A, a genetic and terminal condition that will gradually rob him of his ability to walk, eat, and move independently.
Tate’s diagnosis came after 18 months of testing, following early concerns Tammy had about her son’s development. “When Tate was two, he was diagnosed with autism, but deep down I always felt there was more,” she said.
Now, Tammy is exploring treatments not available on the NHS and working with the Cure Sanfilippo Foundation, hoping to give Tate more time to remain active and enjoy everyday moments. “These potential trials or therapies could give him more days filled with climbing, running, and exploring — precious moments before the disease progresses,” she said.
Tammy has set up a GoFundMe page to support Tate’s treatment and experiences, raising over £5,000 of her £11,000 target. She added, “If no treatment is possible, the funds will go toward creating as many special memories as we can while he’s still able.”
